“It’s not a tumor!” 

Couple of years ago I have discovered that I have what we now call a Rathke’s Cleft cyst on my pituitary gland. It is 3 mm big. We came across it by accident.  I have finally found a good endocrinologist for my adrenal insufficiency and she requested all of my scans. And I have had quite a few brain MRIs because of my migraines  (and CTs and who knows what) along with scans and X-rays of pretty much every single part of my body. 

The call came pretty quickly. The secretary asked me if I could come in for an appointment the next day, during which the doctor explained that while it is nothing serious she would like me to have another MRIS of my pituitary gland within a week. At this point I was wishing for a bottle of Pepto Bismol.  

That MRI did confirm that there is something 3 mm big, fluid filled on my pituitary gland.  It has been there for a couple of years and no radiologist has ever bothered to notice, how sad. It makes me wonder what else they have missed or what is the point of even having these investigations if they are not even looking at the scans….

After reading up on Rathke’s Cleft cysts all it pretty much explained all of my symptoms that have been bothering me for years so I have decided to ask around about the option of having it removed. 

After meeting with a group of specialists I was told that it cannot be causing my symptoms and no one would ever operate on such a small cyst. And that was it. But I was told that it is crucial for me to have a yearly MRI scans to observe it. 

To tell you the truth my feelings are beyond mixed. So it is crucial to see if it is not growing, because then it will be soon soooo easy to operate, but they won’t touch it now even though it is pretty much half of my pituitary gland. And I might not have a medical degree  (although I have about 80% of the courses done), but when about 50% of your pituitary gland is occupied by a foreign body and you are experiencing symptoms linked to pituitary gland problems…… calm blue ocean, just breathe through it. I  know that in the US these operations are done, most likely because of the way insurance works. Our “free” Canadian insurance just doesn’t want to pay for it…


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